Larry and I made the early drive to Children's National Medical Center on Wednesday morning for Kennedy's MRI. Neither of us could sleep the night before, and we both had horrible headaches when we woke up. Our nerves were getting the best of us, and we were just praying for the best outcome possible.
I was more concerned about the anesthesia than I was of the results. Looking back on it now, I think that was something I didn't really need to worry about. Kennedy was a trooper the whole morning. She was smiling at everyone and kicking her little legs with excitement. Her cheerful mood helped us keep our spirits high and kept us laughing while we were waiting on the anesthesiologist.
They gave her a little orange medical gown that was so cute on her. The doctor made her as comfortable as possible and we were able to hold her hands and talk to her until the laughing gas kicked in. They had us leave before they put the IV in her foot and told us that she would be done in about an hour.
We were able to go back into the recovery room and hold her while she woke up. She had to fast before the test, so she was crying for some food as soon as she woke up. Our friends from Concierge came in to check on her and it was so great being able to share that moment with them. Once Kennedy ate a little, she did her best to give everyone a groggy smile. You could tell she was still very loopy, and it made her smiles even more special.
Children's hospital told us that we would not know anything for about a week and someone would call us with the results. They gave us a CD of the pictures they took, so we popped it in our computer as soon as we got home to see if we could find a tumor. Needless to say, we didn't have a clue what we were doing...and we weren't sure what was scar tissue and what was a tumor. They used contrast during the MRI, which is a dye that helps the test be read, so the colors were different as well.
Yesterday, Paula from Concierge called me and she said she spoke to the doctor that read Kennedy's MRI. The doctor told her that there is definitely something there, but there is still more analysis that needs to be done. They want us to go back to DC so the doctors can explain things in more detail. I'm not going to lie, my heart dropped when Paula told me that she still has a tumor; however, we are thankful that she is going to set us up with the best doctors there. Kennedy also needs to see a cardiologist about her heart issues and lower body circulation problems, so Paula is going to cancel our appointment that we already have set up and move all the appointments to one day so Larry doesn't have to miss a whole lot of work.
Larry is worrying himself to death, and I reminded him to stay calm and to keep his trust in God. We have come so far in this adventure, and this is just a little bump in the road. She is a warrior and I know she will continue to win these battles.
Psalm 119:50 says "Your promise revives me; it comforts me in all my troubles"
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3 comments:
Hello, I came across your blog as I was looking for information related to PDA's and one of my twin sons had a PDA.
I can identify with your feeling and your pain, my children were born very early and that was very very painful and caused an over shadowing cloud of stress (and the headaches that await you in the morning).
I can see from your posts that you believe in God. What is your faith exactly?
Yes I have a very strong faith in God, and He is why my baby has done so well. www.thelivingroom.us is the website to my church.
You know, I will tell you some things that may require you to rethink your beliefs.. Not that I'm anything of importance but simply that I and my wife have been where you are.
My son Karter somehow was allowed to leave the NICU with a PDA, no one discovered this for two years and just by chance out doctor discovered it at a routine visit. Of course, being parents, this brought about instantaneous stress...
I'm so sorry, this is going to take a lot of typing to get to the point, would it be possible for me to have your email address? Boy!, have I got a story for you!
If it's ok with you, send it to jipock@gmail.com and I will explain why I think your child should be healed. Please send it, I promise, I'm not a kook..well, mostly not!
In the mean time, you can see where I'm going by looking at our blog..
http://apositivesign.blogspot.com/2008/10/our-miracle-story.html
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