I surprised Kaylee and took her to Jumbo's Pumpkin Patch in Middletown on Sunday. Larry had to work, so I took both the girls out into the country to enjoy a nice evening together. The drive there was peaceful and so beautiful.
Once we got to the farm, Kaylee was completely shocked that I took her there. We have been talking about going as a family, but Larry has been working a lot of overtime and has been either working or sleeping when we had the opportunity to go. We wanted to go on Saturday, but ended up getting rained out. I really wanted to take Kaylee to a pumpkin patch and have those memories for her to hold on to. The only other time we have ever gone to a pumpkin patch was for her kindergarten field trip. That is a sad thing to admit to, and I didn't want her to miss out on the experience any longer.
I took a bunch of pictures and they both had a blast. Kennedy got cranky on the ride back to the farm from the pumpkin patch, but calmed down once she got her bottle. Over all, it was a fun-filled evening and I am so glad I made the decision to take them. Kaylee begged me to go in the corn maze, but they told me that it was not stroller friendly...and I was not going to attempt to carry Kennedy through a maze that I could get lost in. Maybe Larry and I can get a sitter one night for Kennedy and find a local corn maze to go to.
Tuesday, October 28, 2008
Friday, October 17, 2008
MRI at Children's Hospital in DC
Larry and I made the early drive to Children's National Medical Center on Wednesday morning for Kennedy's MRI. Neither of us could sleep the night before, and we both had horrible headaches when we woke up. Our nerves were getting the best of us, and we were just praying for the best outcome possible.
I was more concerned about the anesthesia than I was of the results. Looking back on it now, I think that was something I didn't really need to worry about. Kennedy was a trooper the whole morning. She was smiling at everyone and kicking her little legs with excitement. Her cheerful mood helped us keep our spirits high and kept us laughing while we were waiting on the anesthesiologist.
They gave her a little orange medical gown that was so cute on her. The doctor made her as comfortable as possible and we were able to hold her hands and talk to her until the laughing gas kicked in. They had us leave before they put the IV in her foot and told us that she would be done in about an hour.
We were able to go back into the recovery room and hold her while she woke up. She had to fast before the test, so she was crying for some food as soon as she woke up. Our friends from Concierge came in to check on her and it was so great being able to share that moment with them. Once Kennedy ate a little, she did her best to give everyone a groggy smile. You could tell she was still very loopy, and it made her smiles even more special.
Children's hospital told us that we would not know anything for about a week and someone would call us with the results. They gave us a CD of the pictures they took, so we popped it in our computer as soon as we got home to see if we could find a tumor. Needless to say, we didn't have a clue what we were doing...and we weren't sure what was scar tissue and what was a tumor. They used contrast during the MRI, which is a dye that helps the test be read, so the colors were different as well.
Yesterday, Paula from Concierge called me and she said she spoke to the doctor that read Kennedy's MRI. The doctor told her that there is definitely something there, but there is still more analysis that needs to be done. They want us to go back to DC so the doctors can explain things in more detail. I'm not going to lie, my heart dropped when Paula told me that she still has a tumor; however, we are thankful that she is going to set us up with the best doctors there. Kennedy also needs to see a cardiologist about her heart issues and lower body circulation problems, so Paula is going to cancel our appointment that we already have set up and move all the appointments to one day so Larry doesn't have to miss a whole lot of work.
Larry is worrying himself to death, and I reminded him to stay calm and to keep his trust in God. We have come so far in this adventure, and this is just a little bump in the road. She is a warrior and I know she will continue to win these battles.
Psalm 119:50 says "Your promise revives me; it comforts me in all my troubles"
I was more concerned about the anesthesia than I was of the results. Looking back on it now, I think that was something I didn't really need to worry about. Kennedy was a trooper the whole morning. She was smiling at everyone and kicking her little legs with excitement. Her cheerful mood helped us keep our spirits high and kept us laughing while we were waiting on the anesthesiologist.
They gave her a little orange medical gown that was so cute on her. The doctor made her as comfortable as possible and we were able to hold her hands and talk to her until the laughing gas kicked in. They had us leave before they put the IV in her foot and told us that she would be done in about an hour.
We were able to go back into the recovery room and hold her while she woke up. She had to fast before the test, so she was crying for some food as soon as she woke up. Our friends from Concierge came in to check on her and it was so great being able to share that moment with them. Once Kennedy ate a little, she did her best to give everyone a groggy smile. You could tell she was still very loopy, and it made her smiles even more special.
Children's hospital told us that we would not know anything for about a week and someone would call us with the results. They gave us a CD of the pictures they took, so we popped it in our computer as soon as we got home to see if we could find a tumor. Needless to say, we didn't have a clue what we were doing...and we weren't sure what was scar tissue and what was a tumor. They used contrast during the MRI, which is a dye that helps the test be read, so the colors were different as well.
Yesterday, Paula from Concierge called me and she said she spoke to the doctor that read Kennedy's MRI. The doctor told her that there is definitely something there, but there is still more analysis that needs to be done. They want us to go back to DC so the doctors can explain things in more detail. I'm not going to lie, my heart dropped when Paula told me that she still has a tumor; however, we are thankful that she is going to set us up with the best doctors there. Kennedy also needs to see a cardiologist about her heart issues and lower body circulation problems, so Paula is going to cancel our appointment that we already have set up and move all the appointments to one day so Larry doesn't have to miss a whole lot of work.
Larry is worrying himself to death, and I reminded him to stay calm and to keep his trust in God. We have come so far in this adventure, and this is just a little bump in the road. She is a warrior and I know she will continue to win these battles.
Psalm 119:50 says "Your promise revives me; it comforts me in all my troubles"
Monday, October 6, 2008
Touching Email
Well, I got an email on babyruffner@yahoo.com the other day and it made Larry and I feel so great about our decision to create this blog. The email was from a mom of another SCT survivor, and she thanked us for helping her through her emotions with what she was going through with her newborn. She was able to find our blog on the internet while she was searching for information about SCT's.
I got online this morning to respond back to her email, and I accidentally deleted it!!! What makes it even worse is Yahoo put the email in the SPAM folder for some reason, so when I accidentally hit delete...it erased it forever!!! I searched through all the Yahoo options and everything said that there was no way to retrieve the email. I was so mad at myself, and couldn't believe that I did that!
Larry and I have said from the beginning that Kennedy is on this Earth to bless so many people, and that email just reinforces our beliefs. When people meet Kennedy and hear her story, many are moved to tears. I am easily choked up, so most of time I will cry with them. Those tears for us, are tears of joy because she is so awesome and we are so blessed to have her with us. We really feel that she has changed many people's lives and showed them how special life is, and we are thankful for that.
So for the person's email that I lost, I would love to hear from you again. I promise, I will save your email address as soon as I get it! :-)
I got online this morning to respond back to her email, and I accidentally deleted it!!! What makes it even worse is Yahoo put the email in the SPAM folder for some reason, so when I accidentally hit delete...it erased it forever!!! I searched through all the Yahoo options and everything said that there was no way to retrieve the email. I was so mad at myself, and couldn't believe that I did that!
Larry and I have said from the beginning that Kennedy is on this Earth to bless so many people, and that email just reinforces our beliefs. When people meet Kennedy and hear her story, many are moved to tears. I am easily choked up, so most of time I will cry with them. Those tears for us, are tears of joy because she is so awesome and we are so blessed to have her with us. We really feel that she has changed many people's lives and showed them how special life is, and we are thankful for that.
So for the person's email that I lost, I would love to hear from you again. I promise, I will save your email address as soon as I get it! :-)
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