Saturday, June 27, 2009

BIG GIRL

Kennedy will be 15 months old in a week and just started to walk like a big girl. Larry said it was her Father's Day gift to him :-) She has been walking for 7 days now, and it hasn't gotten old yet. All of us are full of smiles every time she walks over to us. Kennedy is very proud of her achievement and has a huge grin on her face every time she walks around. It is the cutest thing ever!

She had her tubes put in a few months back, but still had a bad episode of the mysterious illness she's been struggling with since November. They were hoping that the tubes would stop them, but apparently there is another problem that noone can find. Her white blood cell count got up to 30 and all the doctors went into a panic testing for everything possible to diagnose why she keeps getting sick...but were unsuccessful with finding the cause.

We took her to see her surgeon at CNMC in DC earlier this month and asked him if he thought these illness's were related to her tumor and all the complications she had at birth. He has no idea why she keeps getting sick, but does not think it is related at all. He did a rectal exam to check on the growth of her current tumor and gave us the wonderful news that he could not feel the tumor. We did a blood test to check her AFP levels as well and they were 5.1---which is amazingly low!! Kennedy is finally TUMOR FREE and we couldn't be more happy. Dr. Powell said that either this tumor was mis-diagnosed over the past 2 MRI's and was just scar tissue....OR it was infact a tumor that has disappeared. Either way, everything is gone and he said that her gluteal area feels just like a normall butt. VERY VERY COOL!! Just another miracle from God.

Now...if we can just get her off the bottle! lol. She hates sippy cups and does not want to give up the nipple. If that is all we have to worry about, I think we are okay! :-)

1 comment:

~Nikki ! CNMC said...

I am so upset I missed you ALL!!!!I cant believe my sweet girl is walking already(smile. Please give hugs and kisses to the "girls"for me!