Wow, it was so nice to sleep in my own bed last night! Larry and I both woke up with horrible headaches, but we think it was because we slept so well! I had forgotten how nice it was to be home and be able to lay next to my husband without any worries. I have a new appreciation for my mattress that I complained about when we had to buy it last year. I thought it was way too expensive...you cannot put a price on comfort!
We called to check up on Kaydence and they told us that she pulled the breathing tube out around 12:15 today! They had planned on taking it out anyway sometime this afternoon...but she helped them out a little. She hates that thing, and we have been taking her hands off of it for days now. She had another great day, and the nurse's have been very happy with her strength that she is getting back.
Larry and I treated Kaylee to Buffalo Wild Wings for lunch today. She loves going there with her dad because we get a booth that you can play games while you are sitting and eating. They have so much fun playing those silly games...it is a real treat for her when we go there. We even let her order ice cream today instead of waiting until we got home!
Overall, even though I miss my baby terribly, I am glad we came home to get some rest. I took a nice long nap this afternoon and we were able to straighten up around the house a little. I know that I am going to have to give in and let my friends clean my house before Kaydence comes home, but it is hard to welcome the idea. I have had so many people offer to cook and clean for us, and I cringe at the idea of someone coming into my house when it is filthy! Ah, not only will they smell the littler boxes...but they are willing to CLEAN THEM TOO! That is embarrassing to me, but I guess I will have to get over it. I told Larry that if we just divide up the weeks to one person per week....we could get our house cleaned and our meals cooked every week for a year! Now that sounds like a great idea...lol lol lol!
Update:
She is doing better than ever
We extabated herself (pulled the breathing tube out)
Now she is on Nasotherm (moist air flow in her nose)
They are supposed to finally feed her breast milk tomorrow!
She is gaining weight now rather than losing weight.
So Happy!
Another MRI on 1-7-09
Merry Christmas 2008
Our first picture together
Ava and Kennedy
best friends playing together
Kennedy the Cat
Halloween 2008
Waiting Patiently
11-5-08 Childrens Hospital
Getting her EKG
11-5-08
Enjoying the scenery
Soaking up the memories
Out in the Pumpkin Patch
They are as big as she is!
The smile that melts our hearts
Having fun in her saucer
Making Daddy Laugh
Kennedy kicking with excitement
Kennedy in her medical gown
10-15-08 MRI
Happy Birthday Kaylee
I made the cake
One of our favorite onsies!
No, her butt is starting to fill out though!!!
GO WVU!
Dressed and ready to watch the game
My Family
8-4-08 Full of Smiles
WV Baby!
Sleeping on mommy's chest
annagphotography pic
Look how CUTE!
5-4-08 Changing diapers
Larry changing a dirty one...he has a weak stomach!!
5-3-08 Celebrating
"Goodbye to all those cords and needles!"
5-3-08 Going Home
Getting ready to leave the NICU
4-23-08 Meeting Pappy
Kaydence and my dad finally met
4-21-08 Holdin my hand
She has a really good grip!
4-20-08 Light's Out!
I guess she thought it was too bright in the room!
4-19-08 They are so cute together
Kaylee holding her sister for the first time
4-19-08 Relaxing
She was very relaxed in her isolette
4-17-08 This is what she does when she is full
"Mommy, I am done eating!"
4-17-08 Her first outfit!
I bought this onsie at Target. It was the only outfit they had in her size.
4-16-08 Kangaroo Care
The best moment ever!
4-16-08 HOW CUTE
She was holding her binky in her mouth
4-15-08 Snug as a bug in a rug!
She took a nice long nap after she ate
4-15-08 Eyes wide open
"Mom, I am hungry!"
4-14-08 Her first hat!
We left her with her new oversized hat, and her puppy for protection
4-10-08 Bili Phototherapy
Kaydence was relaxing with her goggles on
4-10-08 A match made in Heaven
Their first bonding time
4-10-08 Kaylee and Kaydence
Kaylee checking her sister's temperature
4-10-08 Isn't it perfect!!
Who would have thought that we would be so proud to show her private's off! *She is going to kill us when she gets older*
4-8-08 I got to hold her
Wow...what a rush! I could've held her all night.
4-8-08 Her little puppy
Her puppy helps her calm down when we put it on her head
Kaydence 4 lb 3.5 oz
Without the teratoma
Kaydence 6 lb 10 oz
With the teratoma
April 7, 2008
Stretching out
April 6, 2008
Lookin better and better each day
Diaper Day
the smallest diaper they had
Kaydence Kennedy
Happy Birthday!
Goodbye Belly!
One Last Belly Kiss
Larry and me
IT IS TIME!
About Me
- Kennedy Ruffner
- Kennedy Ruffner was born on April 2, 2008 with a rare disorder called Sacrococcygeal Teratoma (SCT). Her chances for survival were questionable but we had our faith in God that she would make it. She is our miracle child, and we know that she is in this world to bless so many people.
6 comments:
Glad everybody got a good nights sleep. Prayers were said for Kaydence at churches all over the country today. And it sounds like they are working. We all pray it continues and she is home with her family real soon.
Kristen~Just want you to know that I am thinking about you. I am keeping you and your whole family in my prayers. Kaydence is a beautiful baby. I can't wait to meet her. I am sorry that I missed seeing you yesterday at church.
Take care. Love,Jody
hey guys! so happy everything is going so well, you deserve all the happiness in the world, it just took going through some stuff to get to it but it will be soooo worth it! glad you finally gave in and let your Living Room family help out, just say the word and the entire crew will take care of the cleaning before you get home. and all that yummy food we are making too! and the guys want to help out with the yardwork and anything else you need. kaydence is right where she needs to be right now to get strong and healthy. we can't wait until you are all home for good. praying continuously for you all! love, chris and denny
ps-remember, we clean the toilets at the LR, your litter box will be a pleasure!! ha! ha!
What a beautiful family! Kaydence is a blessed child to have such awesome parents and a fantastic big sister, all looking forward to the happy day when she can come home (and to church, of course!) I pray that the day comes quickly for you all. I cannot wait to be able to hold her. Love to you all, Susan
I don't know you, my husband knows your husband from the acadamy and he showed me this blog, and i just wanted to write you and tell you,your in our thoughts and prayers, we'll be praying for a quick recovery God bless..
Kristen~Left you a little package at the NICU front desk. Ask them about it if they don't mention it. Hope you and Larry are able to use some of the things....maybe it can spare you a cafeteria meal! You are in our prayers!
Sara and Rick Northcraft
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