April 29, 2008

Reminder about the Usborne Book Fundraiser

Website to order: www.ubah.com/HOS112750

FRIDAY- May 2, 2008 is the last day for the Usborne book orders.

25% of the retail sales will go towards Kaydence

Thank you to everyone that has already placed an order!

We really appreciate your support!
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Kaydence is very sleepy today, and has not wanted to take her milk by bottle much. They took more blood this morning to monitor her AFP levels, and the physicians were able to discuss the results of the cat scan with me during rounds. Great news...there are no signs of any masses in her thoracic area (chest area), and they are pretty certain that she only has the one tumor on her sacrum. They also feel that this tumor is cystic just like her last one. Cystic means fluid filled, and that lessons the chance of cancer cells. It is more common to have cancerous cells around solid tumors, but there is still a chance that hers is cancerous. They will definitely test it once it is removed just to make sure.

They told me last week that she can now wear clothes, so I washed up the ones from gifts and we also bought some more at Target and Wal-Mart. I think I have enough to get us through her preemie stage, and I am excited to see her in them. So my night nurse, Paula, held off on changing her outfit because she knew I wanted to do it this morning. I had butterflies while I was choosing what to put on her, lol!! I just feel like it is one more step closer to being normal, ya know?

Overall, she had one of her bad days...and that is expected with all preemie babies. They had to move her picc line from her left foot to her left arm. That procedure is nothing to smile about, and I had to leave the room because I didn't think I could hear her crying. A picc line is a line that is run through her veins to her heart. Then they have to xray it to make sure it is placed correctly. I was gone for 3 hours in the cafeteria so I wouldn't see it, and they were still adjusting it when I came back. She was exhausted all day long, and this procedure just drained her even more.

Concierge Services snatched me up and took me downstairs to show me a surprise that they put together for me. I just love love love those people, and they were apparently planning something special for me today. They take me into a room and give me a car seat/stroller travel system from Target! I had no idea they were planning to do that, and I just stood there in shock. Amazing, just amazing that people that hardly know my family would want to do special things like that. It definitely brightened my day! They are truly wonderful people that go out of their way to make me smile.

I changed one of her dirty diapers today, and yuk...formula fed babies stink!!!! I could smell her from far away, and she never smelled bad with the breast milk. I will be glad when that formula gets out of her system and she starts smelling better...lol. She is back on breast milk until I can't make enough again.

Right before I left for the evening, they did another ultrasound on her brain to see how the brain bleed was. I was talking to the guy that was working on her, and he said that in his opinion, it did not look any worse...but the physicians would look at it in more detail tomorrow.

I found a weight conversion chart today shows converts grams to pounds and ounces...and she weighs 5 pounds 3 ounces already! Wow...I was still thinking that she was under 5 pounds. Now I am worried she won't get the chance to wear all those preemie clothes we got! lol.